The Unwilling Statistic - OR - Fuck That!

I’ve got a list of diagnoses a mile long, including diabetes, afib, and sleep apnea; however, it’s the COPD (which is just a pretty way of saying emphysema) that’s trying to put a timestamp on my life. They say three to five years. That’s the math. The worst part of that math is knowing I wrote the equation myself. Forty-five years of heavy smoking has caught up to me, and now my lungs are paying the debt I racked up. I have nobody to blame but the person in the mirror.

But here’s the thing: I’m not willing to die this young. I’m not done yet. Fuck that!

Ink, Strings, and Serenity OR Happy Little Clouds

There is a specific kind of silence that happens the moment I cap my pen after finishing a Zentangle. My hand is usually a bit cramped from the precision of the patterns, but my mind is finally quiet. To keep that peace from evaporating, I reach for my ukulele. The transition from the visual rhythm of ink on paper to the literal vibration of strings against my fingertips is where I find my center.

It’s a world of tiny, deliberate wonders. One hour I’m watching a Shrinky Dink curl and toughen under the heat, and the next I’m assembling an angel keychain, bead by bead. These aren't just crafts; they are anchors. In a world that feels increasingly loud and disposable, these small acts of creation are how I claim my space.

41 Pounds of Irony (And Zero Regrets)

I’ve been dropping weight since November. Just grinding it out, watching the scale tick down from 374. I hit 333 and felt like I was finally getting a handle on my own skin.

Then, a few weeks ago, the doctors decided to drop the other shoe: COPD. They handed me a three to five year sentence like it was a piece of junk mail.

Talk about a cosmic joke. I quit smoking two years ago, and let me tell you, that was harder than fuck. If I’d gotten this diagnosis back then, I probably would’ve gone straight out and bought another pack just to spite the world. But I didn't. I stuck it out because I like not stinking of smoke, and I like not having one hand permanently occupied by a cigarette. Most of all, I like not having to haul my ass outside 40 to 60 times a day just to feed the beast.

I spent two years reclaiming my time and four months shedding 41 pounds of gravity, just to find out my lungs are trying to quit the team anyway.

Carpe the Fucking Diem

So my COPD is stage two moving into stage three.

What does this mean?

3-5 years remaining to me. 4-6 if I'm really lucky and extremely diligent.

I did this to myself. I knew I was risking an early death with my chain smoking. Now it's a reality, not just a risk.

Reclaiming Joy: From Chronic Pain to Creative Flow

It’s been years since I felt this kind of creative spark, and honestly, I’m just wallowing in it.

For a long time, I let hand arthritis convince me that my crafting days were over. I packed up the beads, put away the clay, and assumed that part of my life was a closed chapter. 

The Dog Who Broke My Heart and the Dog Who Put It Back Together

I didn’t go looking for Lulu. She found me. She was five years old when I got her, already past the puppy chaos, already herself. The first time I saw her, she walked straight over, climbed into my space like she belonged there, and rested her head on my heart. Not my lap. Not my hand. My heart. I said her name and she responded instantly, like she already knew it was hers. From that moment on, she was mine and I was hers.

The Voice I Thought I Lost

 

Me, 17 years old

All my childhood and teens I sang, sang all the time. Played guitar. Music was the thing that brought me to life, and I wanted nothing more than to buy a PA system and join a band. The singers I listened to shaped my style. Grace Slick, Tina Turner, Ann Wilson, Janis Joplin, Janis Ian, Joni Mitchell.

My dad always encouraged me in my music, always asked me to play and sing for him, always got happy when I learned a new song or wrote one. He especially loved that. He gifted me my Harmony Sovereign for Christmas when I was twelve and paid for guitar lessons twice a week for several years. He was my biggest fan.

When I was fourteen I won a school wide talent show singing the 59th Street Bridge Song by Simon and Garfunkel and accompanying myself on my Harmony Sovereign guitar. That was the kind of kid I was. Music was where I lived...

Who has time to be bored? Not me!

Today was not really an art day. I diddled around with the Gimp for about an hour, then my writing muse slapped me upside my head. I have written six articles for my blog today about all kinds of things:

• Impeaching Trump 
• Chicago and Music being in my bones
• A bit about a portmanteued proverb I love 
• One about nicotine addiction
• One about god, or the idea of god, or whatever
• And this one, which only kind of counts

It was a productive day.

I really am an eclectic freak. Playing uke and recorder, doing digital art and zentangle and making jewelry, and writing from my gut. Between all that, I talk to people, make new friends, share a gazillion memes, play computer games, and more. And when I go to bed, I read for at least an hour before turning out the light.

I don't have time to be bored. Considering that I'm basically housebound and can't really leave my bedroom due to the difficulty involved in hauling my carcass from room to room, my life is incredibly rich and full.

I am a very fortunate old crone.

The Cravings Never Really End

Nicotine Is Insidious.

I just spent five stupid minutes going full tornado, ripping through my desk like I was searching for state secrets. Lifting papers, opening drawers, rifling like a woman possessed.

Looking for my fucking cigarettes.

My cigarettes.

I quit smoking two years and five weeks ago.  

There is no nicotine in this house.  

There has not been for a long damn time.

And yet my brain still tried to run the old script:  

"Quick! Check under that pile of junk mail! Maybe Past You stashed a pack for Future You, like some deranged nicotine Easter Bunny!"

D'OH.

Nicotine is a sneaky little bastard. It shows up at the weirdest moments, taps you on the shoulder, and whispers, "Hey... remember how good we were together?" 

And I swear, for about ten seconds, or ten minutes depending on how stressed I am, I would absolutely throw hands for a smoke.

But here is the thing:  

I am not losing this fight.  

Not today, not ever.
Never fucking EVER!

Cigarettes are banned from this house like cursed artifacts. My brother, who still smokes, has to keep his pack in the car and trek a hundred feet to the designated exile chair. That is the rule. That is the boundary. That is how I keep myself safe.

I am stealing a line from my friend and webqueen, Maggie:  

I am not an ex smoker.  

I am a smoker in recovery.

And recovery is a permanent condition, but so is my stubbornness.

Nicotine can try me, but it is not getting back in. Fuck that.

Reblogging Michael Jochum - Clots and Prayers

It's extremely unfair to speculate about Trump's health just because he’s elderly and can't form linear thoughts and has the diet of a first grader who won the lottery and his flesh has been changing color like autumn leaves.

Even the most monstrous structures carry a weakness inside them, a small rebellion under pressure. Similar to a blood clot in the physical body. I believe in that weakness. Go, clot. Do your work

Clots and prayers